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ASEAN Journal of Community Engagement

Authors

Yunia Irawati, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, IndonesiaFollow
Sri Linuwih SW Menaldi, Department of Dermatology and Venereology Faculty of Medicine Universitas Indonesia, dr. Cipto Mangunkusumo Hospital Jakarta, IndonesiaFollow
Melinda Harini, Study Programme of Physical Medicine and Rehabilitation, Faculty of Medicine, Universitas Indonesia, Jakarta, Indonesia and Department of Rehabilitation Medicine, dr. Cipto Mangunkusumo Hospital, Jakarta, IndonesiaFollow
Luh Karunia Wahyuni, Study Programme of Physical Medicine and Rehabilitation, Faculty of Medicine, Universitas Indonesia, Jakarta, Indonesia and Department of Rehabilitation Medicine, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Wanarani Alwin, Study Programme of Physical Medicine and Rehabilitation, Faculty of Medicine, Universitas Indonesia, Jakarta, Indonesia and Department of Rehabilitation Medicine, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Astari Dwiranti, Department of Biology, Faculty of Mathematics and Natural Sciences, Universitas Indonesia, Depok, IndonesiaFollow
Adhityawarman Menaldi, Faculty of Psychology, Universitas Indonesia, Depok, IndonesiaFollow
Sonny Tirta Luzanil, Faculty of Psychology, Universitas Indonesia, Depok, Indonesia
Qaishum Matsurah, Faculty of Psychology, Universitas Indonesia, Depok, Indonesia
Dadun ., Center for Health Research Universitas Indonesia, Faculty of Public Health, Universitas Indonesia, Depok, IndonesiaFollow
Rico Kurniawan, Department Biostatistics and Population Studies, Faculty of Public Health, Universitas Indonesia, Depok, Indonesia
Ida Ruwaida, Faculty of Social and Political Sciences, Universitas Indonesia, Depok, IndonesiaFollow
Gunawan Wicaksono, Occupational Therapy Department, Vocational Educational Program, Universitas Indonesia, Depok, IndonesiaFollow
Muhammad Hidayat Sahid, Occupational Therapy Department, Vocational Educational Program, Universitas Indonesia, Depok, Indonesia
Febrina Rahmayanti, Oral Medicine Department, Faculty of Dentistry, Universitas Indonesia, Jakarta, IndonesiaFollow
Florentina Priscilia, Research Assistant, Department of Ophthalmology, dr. Cipto Mangunkusumo Hospital, Jakarta, IndonesiaFollow
Anis Fitriana, Research Assistant, Department of Ophthalmology, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Tri Rahayu, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Made Susiyanti, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Gitalisa Andayani, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Anna Puspitasari Bani, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Hisar Daniel, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia
Yeni Dwi Lestari, Department of Ophthalmology, Faculty of Medicine, Universitas Indonesia, dr. Cipto Mangunkusumo Hospital, Jakarta, Indonesia

Abstract

Leprosy has a high incidence of physical complications that will impact directly the physiological, economic, and social status of patients. Indonesia has a high burden of the disease, and several leprosy settlements are still spread in the country. Neglasari Village, Sitanala, Tangerang serves as one of the places of residence of people who have had leprosy. A health service initiative known as Identifikasi Tanda-Tanda Mata, Ekstremitas, dan Kulit pada Kusta (KATAMATAKU) was launched as a collaboration of health services among multi-departments (ophthalmology, dermatovenereology, and medical rehabilitation). Sitanala has a relatively high incidence of people who have had leprosy with disabilities of the hand, foot, and eye. As a continuation of this health service and combined with the efforts to improve the welfare of leprosy patients, in November 2019, a multidisciplinary program titled KATAMATAKU Universitas Indonesia, was conducted. This program aimed to determine the demographic data regarding the health, psychological, social, and economic status of the leprosy population at Sitanala The project consisted of a collaborative anti-stigma program by the Faculty of Psychology, Public Health, Social and Political Sciences, Cultural Sciences, Administrative Sciences, and Vocational Educational Program; thematic health program, which supports the improvement of physical abilities and empowerment of former leprosy patients, by the Faculty of Medicine, Dentistry, Nursing, and Pharmacy; thematic economics program, which aims to increase the economic capacity of the leprosy community, by the Faculty of Economics and Business, Mathematics and Natural Sciences, and Engineering. This program enabled the construction of a multidimensional management model, in which every aspect plays important roles to improve the patients’ quality of life.

References

Alam, P., & Ahmade, K. (2013). Impact of solid waste on health and the environment. International Journal of Sustainable Development and Green Economics (IJSDGE), 2(1), 165–168. https://intelligentjo.com/images/Papers/general/waste/IMPACT-OF-SOLID-WASTE-ON-HEALTH-AND-THE-ENVIRONMENT.pdf

Amasuomo, E., & Baird, J. (2016). The concept of waste and waste management. Journal of Management and Sustainability, 6(4), 88–96.

https://econpapers.repec.org/RePEc:ibn:jmsjnl:v:6:y:2016:i:4:p:88-96

Astutik, E., & Gayatri, D. (2018). Perceived stigma in people affected by leprosy in leprosy village of Sitanala, Banten, Indonesia. Kesmas: Jurnal Kesehatan Masyarakat Nasional (National Public Health Journal), 12(4), 178–186.

http://dx.doi.org/10.21109/kesmas.v12i4.1756

Centers for Disease Control and Prevention. (1997). Principles of community engagement (1st ed). Atlanta (GA): CDC/ATSDR Committee on Community Engagement.

Chadar, S. N. & Chadar, K. (2017). Solid waste pollution: A hazard to environment. Recent Advances in Petrochemical Science, 2(3), 41–43.

Clinical and Translational Science Awards (CTSA). (2011). Principles of Community Engagament: Second Edition. NIH Publication No. 11–7782.

Dabrera, T. M. E., Tillekeratne, L. G., Fernando, M. S. N., Kasturiaratchi, S. T. K., & Østbye, T. (2016). Prevalence and Correlates of Leprosy in a High-Risk Community Setting in Sri Lanka. Asia-Pacific Journal of Public Health, 28(7), 586–591. https://doi.org/10.1177/1010539516666360

Dijkstra, J. I. R., Brakel, W. H. V., & Elteren, M. V. (2017). Gender and leprosy-related stigma in endemic areas: A systematic review. Leprosy review, 88, 419–440. https://leprosyreview.org/article/88/3/41-9440

El Darouti, M. A., Hussein, S., Al Tahlawy, S. R., Al Fangary, M., Mashaly, H. M., El Nabarawy, E., ... & Abdel Hay, R. M. (2011). Clinical study of nail changes in leprosy and comparison with nail changes in diabetic patients. Journal of the European Academy of Dermatology and Venereology, 25(3), 290-295. https://doi.org/10.1111/j.1468-3083.2010.03783.x

Ferreira, R. C., Gonçalves, T. X., Soares, A. R. D. S., Carvalho, L. R. D. A., Campos, F. L., Ribeiro, M. T. D. F., ... & Ferreira, E. F. E. (2018). Dependence on others for oral hygiene and its association with hand deformities and functional impairment in elders with a history of leprosy. Gerodontology. 35(3), 237–245. https://doi.org/10.1111/ger.12346

Girdhar, B. K. (2016). Chemoprophylaxis. In: Kumar B, Kar HK. Editors. IAL Textbook of Leprosy. New Delhi: Jaypee Brothers Medical Publishers Ltd. p. 490–495.

Gopa, P. K. (2016). Psychososial aspects in leprosy. In: Kumar B, Kar HK. IAL Textbook of Leprosy. New Delhi: Jaypee Brothers Medical Publishers Ltd.p. 541–545.

Hasnain, R., Queijo, J., Laher, S., & Sandahl, C. (2020). Islam, Leprosy, and Disability: How Religion, History, Art, and Storytelling Can Yield New Insight and Acceptance. Societies. 10(1), 6. https://doi.org/10.3390/soc10010006

Hogeweg, M. (2010). Leprosy and the eye teaching set. International Centre for Eye Health, London. p. 1–41.

Hutahaean, B. S. H., & Sumampouw, N. E. (2018). Pelatihan Peningkatan Self-Esteem pada Mahasiswa Universitas Indonesia yang Mengalami Distres Psikologis. Jurnal Ilmiah Psikologi MIND SET, 9(02), 97–114.

Hutapea, C. D. A., & Mashoedi, S. F. M. (2019). Hubungan antara Optimisme dan Distres Psikologis pada Emerging Adults Miskin di DKI Jakarta. Jurnal Ilmiah Psikologi MIND SET, 10(02), 87–103.

Islam, F. M. A. (2019). Psychological distress and its association with socio-demographic factors in a rural district in Bangladesh: A cross-sectional study. PloS one, 14(3), e0212765. https://doi.org/10.1371/journal.pone.0212765

Kaur, H., & Van Brakel, W. (2002). Is beggary a chosen profession among people living in a ‘leprosy colony’?. Leprosy review, 73(4), 334-345. https://pubmed.ncbi.nlm.nih.gov/12549841/

Kaur, I., Chakrabarti, A., Dogra, S., Rai, R., & Kumar, B. (2003). Nail Involvement in Leprosy: A Study of 300 Patients1. International Journal of Leprosy and Other Mycobacterial Diseases, 71(4), 320.

https://www.proquest.com/docview/216030194?pq-origsite=gscholar&fromopenview=true

Kementerian Kesehatan Republik Indonesia. (2012). Pedoman Nasional Program Pengendalian Penyakit Kusta. Jakarta: Kementerian Kesehatan RI.

Kementerian Kesehatan Republik Indonesia. (2017). Profil Kesehatan Indonesia Tahun 2016. in D Budijanto, Yudianto, B Hardhana & TA Soenardi (Eds.) Kementerian Kesehatan RI, Jakarta. p. 166–169.

Kementerian Kesehatan Republik Indonesia. (2018). Hapuskan Stigma dan Diskriminasi terhadap Kusta. Jakarta: Kementerian Kesehatan RI.

Krishnamurthy, K. V., & Rao, S. P. (1990). A study of leprosy affected beggars in Aska. Indian journal of leprosy, 62(1), 113-115. https://europepmc.org/article/med/2141623

Malik, A. N. J., & Morris, R. W. (2011). The prevalence of ocular complications in leprosy patients seen in the United Kingdom over a period of 21 years. Eye, 25(6), 740–745. https://doi.org/10.1038/eye.2011.43

Matos, F. Z., Andreza-Maria-Fábio Aranha, Á. H., Borges, F. L. M. P., Raslan, S. A., Hamida, F., Veiga, K., & Porto, A. N. (2018). Can different stages of leprosy treatment influence the profile of oral health? Oral status in leprosy. Medicina oral, patologia oral y cirugia bucal, 23(4), e376. https://dx.doi.org/10.4317%2Fmedoral.22220

Menaldi, S. L. S. W. (2019). The Quality of Life of Leprosy Patients in Dermatovenereology Polyclinic of Dr. Cipto Mangunkusumo Hospital Jakarta: Study on Social Stigma. eJournal Kedokteran Indonesia, 6(3), 159-165. https://doi.org/10.23886/ejki.6.10107

Mohammed, S. B., & Sookoo, R. (2016). Nutrient film technique for commercial production. Agricultural Science Research Journal, 6(11), 269-274.

https://www.researchgate.net/publication/309866285_Nutrient_Film_Technique_for_Commercial_Production

Olson, R. J., Braga-Mele, R., Chen, S. H., Miller, K. M., Pineda, R., Tweeten, J. P., & Musch, D. C. (2017). Cataract in the adult eye preferred practice pattern®. Ophthalmology, 124(2), P1-P119. https://doi.org/10.1016/j.ophtha.2016.09.027

Pallagatti, S., Sheikh, S., Kaur, A., Aggarwal, A., & Singh, R. (2012). Oral cavity and leprosy. Indian Dermatology Online Journal, 3(2), 101.

https://dx.doi.org/10.4103%2F2229-5178.96700

Patki, A. H., & Baran, R. (1991, March). Significance of nail changes in leprosy: a clinical review of 357 cases. In Seminars in dermatology (Vol. 10, No. 1, pp. 77-81). https://pubmed.ncbi.nlm.nih.gov/2018724/

Pescarini, J. M., Strina, A., Nery, J. S., Skalinski, L. M., Andrade, K. V. F. D., Penna, M. L. F., ... & Penna, G. O. (2018). Socioeconomic risk markers of leprosy in high-burden countries: A systematic review and meta-analysis, PLoS neglected tropical diseases, 12(7), e0006622. https://doi.org/10.1371/journal.pntd.0006622

Rajan, P., Premkumar, R., Rajkumar, P, & Richard, J. (2005). The impact of hand dominace and ulnar and median nerve impairment on strenght and basic daily activities. Journal of Hand Therapy, 18(1), 40–45. https://doi.org/10.1197/j.jht.2004.10.011

Ramos, J. M., Reyes, F., & Belinchón, I. (2013). Nail changes in recent and old leprosy patients. EMJ Dermatol, 1, 44-52.

https://www.emjreviews.com/dermatology/article/nail-changes-in-recent-and-old-leprosy-patients/

Rao, P. S. S., Mozhi, N. M., & Thomas, M. V. (2000). Leprosy affected beggars as a hidden source for transmission of leprosy. Indian Journal of Medical Research, 112, 52. https://www.proquest.com/docview/195984171?pq-origsite=gscholar&fromopenview=true

Reis, B. M., Castro, S. S. D., & Fernandes, L. F. R. M. (2017). Limitation of activity and restriction of social participation in relation to age range, gender, and education in people with leprosy. Anais brasileiros de dermatologia, 92, 335-339.

https://doi.org/10.1590/abd1806-4841.20175216

Romero, I. B., Rincón, J. R., & Rabell, F. R. (2012). Nail involvement in leprosy. Actas Dermo-Sifiliográficas (English Edition), 103(4), 276-284. https://doi.org/10.1016/j.adengl.2012.05.006

Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1-2), 133-156. https://doi.org/10.1300/J083v47n01_09

Turnip, S. S., & Hauff, E. (2007). Household roles, poverty and psychological distress in internally displaced persons affected by violent conflicts in Indonesia. Social Psychiatry and Psychiatric Epidemiology, 42(12), 997-1004. http://dx.doi.org/10.1007%2Fs00127-007-0255-3

van Brakel, W. H., Peters, R. M. H., Pereira, Z. B. S. (2018). Stigma Related to Leprosy—A Scientific View Part 1 Section 4 Chapter 4.5. International Textbook of Leprosy.

https://m3u9w4p9.stackpathcdn.com/sites/default/files/ITL_4_5%20FINAL.pdf

World Health Organization (WHO). (2016). Global Leprosy Strategy 2016–2020. World Health Organization.

World Health Organization (WHO). (2018). Blindness and vision impairment. World Health Organization.

Zhang, M., Zhang, J., Zhang, F., Zhang, L., & Feng, D. (2018). Prevalence of psychological distress and the effects of resilience and perceived social support among Chinese college students: Does gender make a difference?. Psychiatry Research, 267, 409-413. https://doi.org/10.1016/j.psychres.2018.06.038

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